My Favourites

My own resources which you might find helpful

Blogs I read which you might also enjoy

Shocking Pink - supporting young women with breast cancer

The Warwick Foundation - A resource for young adults (18+/- to 40+/-) living with cancer

Cancer Council Helpline (Australia) phone 13 11 20 - they were great at answering all kinds of curly questions when I was first diagnosed.


Resources for friends, family, and colleagues

  • Cancer Council (Australia) Working with cancer  -  developed in association with employers and people diagnosed with cancer



Products

  • Camisole Connection - a US based website providing information about cancer-related resources and products. These products are available through retail outlets; including specialty boutiques, prosthetic & orthotic shops, drug stores, hospital gift shops, and cancer centres. Created and maintained by Kathy, a cancer survivor.

Survivorship: after treatment


Who’s who in the breast cancer world?


Please note that country-specific websites usually offer resources and advice related to that country's medical system and may not be relevant to your situation. This is particularly true for financial assistance, paid services, and further links from the sites.


(Australia) National Breast Cancer Foundation

  • National organisation
  • Focus is on research

  •  "The National Breast Cancer Foundation (NBCF) is renowned for funding high quality research and supporting a generation of significant milestones in breast cancer knowledge." (NBCF website)

 

(Australia) Breast Cancer Network Australia

  • National organisation

  • Focus is on support and advocacy

  • "Breast Cancer Network Australia (BCNA) works to ensure that women diagnosed with breast cancer, and their families, receive the very best information, treatment, care and support possible, no matter who they are or where they live." (BCNA website)

  • Among many resources, you can contact BCNA for the useful and informative "My Jouney Kit" or to join an online forum of other breast cancer patients and survivors

 

(Australia) National Breast and Ovarian Cancer Centre

  • National organisation

  • Focus is on providing accurate information

  • "National Breast and Ovarian Cancer Centre (NBOCC) is Australia’s national authority and source of evidence-based information on breast and ovarian cancer. Funded by the Australian Government, NBOCC works in partnership with health professionals, cancer organisations, researchers, governments and those diagnosed to improve outcomes in breast and ovarian cancer."

 

(Australia) Kim Walters Choices

  • Local organisation (Queensland)

  • Focus is on peer support. It's for both private AND public  patients.

  • "The aim of Choices is to provide physical and emotional recovery following diagnosis through information, friendship and support." (Choices website)

  • "Individuals who have been diagnosed with breast cancer or gynaecological cancers can access Choices at any time during their diagnosis, treatment, and even years down the track." (Choices website)

 

(Australia) Cancer Council Australia

  • National organisation

  • Focus is on advice and advocacy

  • "CCA advises the Australian Government and other bodies on practices and policies to help prevent, detect and treat cancer."

  • "We also advocate for the rights of cancer patients for best treatment and supportive care."

 

(Australia) Cancer Council Queensland

  • State organisation

  • Focus is on support, prevention, and education

  • CCQ's SunSmart shop is located at CCQ's premises (Gregory Terrace, Spring Hill, Brisbane)

 

(Australia) Look Good ... Feel Better

  • Look Good...Feel Better is a free community service program dedicated to helping women undergoing treatment for cancer.

  • The purpose of the program is to help manage the appearance related side effects of chemotherapy and radiotherapy, thereby helping to restore their appearance and self image.

 

(New Zealand) New Zealand Breast Cancer Foundation

  • Breast health and breast cancer education and awareness programmes
  • Research grants and medical grants
  • Community outreach groups, such as:
    • Pink Pilates -  physiotherapy rehabilitative 1 on 1 exercise programmme
    • ywca Encore -  rehabilitative group exercise programme
    • Dragon Boat Teams
    • Sweet Louise an exceptional programme which aims to provide a more positive experience for the hundreds of New Zealand women living with life limiting breast cancer


(New Zealand) Breast Cancer Network New Zealand

  • Focus is on information, networking, prevention, and support
  • A nation-wide grassroots organisation for women with breast cancer and supporters.
  • Giving voice to the views of women with breast cancer, working together to ‘make a difference'
  • All welcome


(New Zealand) Breast Cancer Support

  • Information for anyone affected by Breast Cancer, including a forum and recent news and developments

 

(New Zealand) Cancer Society of New Zealand / Te Kaahui Matepukupuku o Aotearoa
  • Focus is on support, research, and health promotion
  • Dedicated to reducing the incidence of cancer and ensuring the best cancer care for everyone in New Zealand
  • Providing a voice on all kinds of issues including cancer detection and treatment

 

(International) Look Good ... Feel Better

  • Look Good...Feel Better is a non-medical, brand-neutral public service program that teaches beauty techniques to cancer patients to help them manage the appearance-related side effects of cancer treatment.

  • Look Good…Feel Better group programs are open to all women with cancer who are undergoing chemotherapy, radiation, or other forms of treatment.


(USA) Young Survival Coalition (YSC)

  • Focus is for women diagnosed with breast cancer under the age of 40

  • Dedicated to the critical issues unique to young women and breast cancer

  • Works with survivors, caregivers and the medical, research, advocacy and legislative communities to increase the quality and quantity of life for women diagnosed with breast cancer ages 40 and under


(USA) American Childhood Cancer Association

  • Focus is on research,  support for parents & families, and advocacy


(USA) Mesothelioma Group Cancer Guide

  • An easy-to-read guide about cancer

  • Great for learning a lot of new vocabulary that is associated with cancer diagnosis

From the website for the Mesothelioma Group, an online resource for Mesothelioma education


Becoming Active & Staying Active

  • PINC & STEEL (NZ & Australia)  PINC & STEEL  -  physio-delivered rehab courses for men and women


Please contact me if you have any other suggestions for this page. Thank you!


Cancer Council Helpline (Australia) phone 13 11 20